February 28, 2019
8:30 AM to 4:00 PM
Natcher Conference Center
NIH Building 45
45 Center Drive
Bethesda, MD 20894
Rare diseases affect an estimated 30 million Americans. On Feb. 28, 2019, NIH will host an event to raise awareness about these diseases, the people they affect and current research collaborations.
Sponsored by NCATS and the NIH Clinical Center, Rare Disease Day at NIH will take place from 8:30 a.m. to 4:00 p.m. ET in the main auditorium of the Natcher Conference Center, Building 45 on the main campus in Bethesda, Maryland. Speakers include NCATS Director Christopher P. Austin, M.D.; NIH Clinical Center CEO James K. Gilman, M.D.; and NCATS Office of Rare Diseases Research Director Anne R. Pariser, M.D.
The event will feature interactive panel discussions on collective research models for rare diseases, patient registries, rare cancer research initiatives, and No Disease Left Behind, No Patient Left Behind. New this year will be the presentation of the first ever Zebbie award for the NCATS Rare Diseases are Not Rare! Challenge. Other highlights include posters and exhibits by rare disease groups and researchers as well as artwork, videos and tours of the NIH Clinical Center.
Admission is free, and the event is open to the public, including patients, patient advocates, health care providers, researchers, industry representatives, and government employees. In association with Global Genes®, participants are encouraged to wear their favorite pair of jeans. Be sure to follow the event on social media using #RDDNIH.