Sample Messages

You don’t have to use these exact scripts, but please do try to include your name, city and state and the phrase "re-authorize the MD-CARE Act" or “oppose the repeal of the Orphan Drug Tax Credit” 

Introduction:  

Hi, my name is (your name) and I’m from (city, state).  
Please re-authorize the MD-CARE Act and oppose the repeal of the Orphan Drug Tax Credit because…

Choose from any of the following or create your own:   

  • …continued funding of research has the potential to transform the lives of people affected by myotonic dystrophy, people like (insert name or relation, such as "my brother," "my daughter," "my grandson," "my wife," etc.) We’re counting on you to help insure our future!  
  • …today there is no cure for myotonic dystrophy, but previous investments in the MD-CARE Act and the Orphan Drug Tax Credit are close to paying off by providing potential therapies. Don’t stop now, let’s finish what we’ve started - help us find a cure! Support the MD-CARE Act and oppose the repeal of the Orphan Drug Tax Credit. 
  • …the MD-CARE Act has driven breakthroughs in research that are getting us closer to the possibility of treatments for myotonic dystrophy. We’re counting on you to help drive DM research and drug development to find a cure! 
  • …myotonic dystrophy is a genetic disorder for which there is no cure. Researchers are close to unlocking treatments for DM that will help ("me,"my wife," "my son," "my mother," etc.) live a happier, healthier and more productive life. We're counting on you to help advance research and save lives! 
  • …right now approximately 1 in 10 Americans are affected by a rare disease, and ("I’m one of them” "my daughter is one of them," "my brother is one of them," etc.) By supporting legislation that furthers rare disease you are bringing ("me," "us," "him," etc.) hope for a better future.