Spring Soiree | Myotonic Dystrophy Foundation

Please join The Anchor Committee for a Spring Soiree to benefit Myotonic.

Date(s)

Friday, September 13

Myotonic Dystrophy News

March 18,2026

The DM COMPASS Study is designed to gather input that may inform future advocacy efforts related to the development of new therapies and treatments for myotonic dystrophy, especially in light of promising advancements in DM research.

March 12,2026

2026 Fellow Feature: Ashwini Prasad, PhD

Meet one of our 2026 Fellows, Ashwini Prasad, PhD! She is a student of Genetics and Genomics at Baylor College of Medicine in Dr. Tom Cooper’s lab in Houston, TX.

March 12,2026

2026 Fellow Feature: Marwa Zafarullah, PhD

Meet one of our 2026 Fellows, Marwa Zafarullah, PhD! She is a postdoctoral fellow at Leland Stanford Junior University in Palo Alto, CA.

February 28,2026

Global Alliance of 60+ Myotonic Dystrophy Organizations Unites for Rare Disease Day 2026

February 28, 2026, Worldwide – In recognition of Rare Disease Day 2026, the Global Alliance for Myotonic Dystrophy Awareness proudly stands together as over 60 organizations worldwide raising awareness of myotonic dystrophy (DM) and advocating for improved care, research, and access for individuals and families affected by this complex rare disease.

February 18,2026

Join The 2026 MDF Advocacy Campaign to Increase DM Research Funding!

Federal funding cuts and disruptions in 2025 impacted progress in myotonic dystrophy research. Now, MDF is urging Congress to support $10 million in new, dedicated DM research funding within the CDMRP as part of the Fiscal Year 2027 Department of Defense spending bill.

Questions?

Request Warmline Support! MDF offers a professionally staffed Warmline for people living with myotonic dystrophy, their caregivers, medical professionals and others to ask questions, find support and guidance and, when appropriate, be connected to additional resources and services. Click here to request Warmline Support.

Additional questions? Contact MDF by email at info@myotonic.org or give us a call at 415-800-7777.