2019 Myotonic Annual Conference Livestream

Myotonic livestreamed the following sessions from the 2019 Annual Conference in Philadelphia on Saturday, September 14th. Check back shortly for the uploaded recordings!

  • 9:00 - 9:50 AM - Financial Planning & DM
    This session reviews financial planning including government benefits, special needs trusts and wills, social security, and more.

  • 10:00 - 11:50 AM - Exercise, Nutrition and Speech
    This rehabilitation panel reviews current research and strategies for managing DM symptoms through exercise, speech and nutrition.

  • 1:00 - 1:50 PM - Heart Health: Understanding DM Cardiac Symptoms
    This session explains how DM may impact your heart, and gives an overview of the cardiac electrical system, common symptoms associated with conduction problems, and preventative measures.

  • 2:00 - 3:20 PM - Patients Report Out: Living with DM over 50
    This interactive panel session was similar in format to the Living with DM: Patient Report on Changes Over Time that was presented at the 2018 MDF Annual Conference. Panelists discussed the disease symptom changes they have experienced living with myotonic dystrophy, followed by facilitated audience participation. This session will help researchers and drug developers understand disease changes and progression from the perspective of over-50 individuals living with DM and their families.

  • 4:00 - 4:50 PM - Industry Updates
    Representatives from biotech and pharma companies provide updates on their drug development efforts in the DM field, including companies new to the Myotonic Annual Conference.

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