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Support Group: Kansas City, MO

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Join us for our meeting in Kansas City, MO!

Sunday, April 7, 2019
2:00 P.M. - 4:00 PM

University of Kansas Research Institute
4330 Shawnee Mission Parkway, Suite 3280
Fairway, KS 66205

Help kick off the Kansas City area’s first Myotonic Dystrophy Support Group. The support group facilitators, John and Susan Cooley, have 2 sons with DM1 and have taken a keen interest in educating their family on DM1 and helping others learn more about DM1, medical and therapeutic assistance and great networking opportunities with other DM1 patients and their families. Light snacks and drinks will be served, parking is available in front of the building.


  • Introductions
  • Jeffrey Statland, M.D. will discuss DM1 and clinic involvement
  • Questions and Answers/Sharing

Please come join us for this kick-off meeting. We are looking forward to meeting you, sharing our story, hearing yours and developing a long-lasting support group. Note, we want people from all over the region to attend. Come one, come all!

To ask a question or RSVP, please contact support group facilitators John and Susan Cooley by email or by phone at (913)219-5671. Even if you don't RSVP, still join us! To share your contact information with John and Susan, please fill out this form.

RSVP on Facebook

We are very excited about this new beginning and hope to see you soon!

Sunday, April 7, 2019





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