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Myotonic Dystrophy News

October 20, 2020

MDF 2020 Virtual Gala

We are delighted to invite you to the Myotonic Dystrophy Foundation (MDF) 2020 Virtual Gala. This one hour live streamed event will celebrate and support the MDF's critically important work on behalf of individuals and families living with myotonic dystrophy.

October 16, 2020

Reflections on Successful MDF Virtual Family Conference

I hope that you and your families are safe and well. Even though COVID-19 has presented many challenges, I would like to share with you a wonderful Myotonic Dystrophy Foundation success story that only came about because of the pandemic. Rather than taking a year off, the MDF hosted its first virtual annual family conference, which took place three weeks ago.

October 16, 2020

Summer Volunteer Finishes US Financial Resources Suite

The MDF Team would like to extend a huge thanks to our Summer Volunteer, Mollie Allred, for completing our series of US Financial Resources!

October 16, 2020

MDF Advocates are the Key to A Cure

Since our founding in 2007, Myotonic Dystrophy Foundation advocates have been educating Congress on the need for increased myotonic dystrophy research funding, working with the Social Security Administration to eliminate red tape for individuals with congenital myotonic dystrophy, and leading initiatives with the U.S. Food and Drug Administration to accelerate drug development and better understand the desires of individuals living with myotonic dystrophy.

August 14, 2020

Myotonic Dystrophy Foundation Brand Refresh

Over the last six months, our new CEO had the privilege of speaking with hundreds of stakeholders throughout the DM ecosystem. Through these discussions, a clear pattern emerged that the adoption of the shortened name “Myotonic” was not having the positive impact intended.

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