Virtual Holiday Party

Join us for a Virtual Holiday Party!

Sunday, December 13, 2020
12:00 - 1:00 PM PDT

You are invited to a Zoom Holiday Party hosted by the NorCal Myotonic Dystrophy Support Group - all DM families welcome, regardless of geography! Adults with DM1, DM2, and their Caregivers are all welcome. Please make sure to register in advance so you can participate in the contest polls! There will be an Ugly Christmas Sweater Contest, Chanukah Candle Lighting, and Christmas Carol Karaoke. Share this event with your friends and RSVP on Facebook!

Questions?

Contact Northern California Support Group Facilitator Leslie Krongold at elkrong@yahoo.com for more details. You can also share your contact information with Leslie by filling out this contact form.

Date(s)

Sun, 12/13/2020 - 04:00AM Add to Calendar 2020-12-13 00:00:00 2020-12-13 00:00:00 Virtual Holiday Party To know more about this Event, Just go to: https://www.myotonic.org/virtual-holiday-party Location Myotonic Dystrophy Foundation info@myotonic.org America/Vancouver public

Myotonic Dystrophy News

April 2,2024

Participants Needed for Important DM Research Study

The Myotonic Dystrophy Clinical Research Network (DMCRN) sites are currently conducting a critically-important research study designed to help drug developers successfully design clinical trials and understand how to assess the efficacy of potential therapies.

March 29,2024

Request for Applications Open - 2025 MDF Research Fellowships & Grants!

We are thrilled to announce the upcoming launch in April of four grant programs aimed at accelerating research efforts to improve the lives of individuals affected by myotonic dystrophy and pave the way toward finding effective treatments and ultimately a cure for this challenging condition. There are multiple fantastic opportunities available - learn more below & get ready to apply!

March 29,2024

Meet the Early Career Grant Recipient: Dr. Johanna Hamel

Dr. Johanna Hamel, an Assistant Professor in Neurology, Pathology, and Laboratory Medicine, developed her interest in DM1 and DM2 during medical school in Germany. Her residency at the University of Rochester, chosen for its focus on neuromuscular medicine and DM, led to a fellowship under Dr. Charles Thornton, funded by the Clinical Research Training Fellowship Award in Muscular Dystrophy.

March 20,2024

Meet the DM Drug Developers

Leading up to and after the 2024 MDF Regional Conferences in the spring, our biotechnology and pharmaceutical partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions in real time.

February 14,2024

Research Fellow Feature: Cameron Niazi

After spending two years at Vertex Pharmaceuticals, Cameron Niazi pursued a Ph.D. at the University of Florida in Dr. Eric Wang's lab. Attracted by the lab's integration of basic science and translational research, joining the Wang Lab also provided a personal connection to DM1.

Questions?

Request Warmline Support! MDF offers a professionally staffed Warmline for people living with myotonic dystrophy, their caregivers, medical professionals and others to ask questions, find support and guidance and, when appropriate, be connected to additional resources and services. Click here to request Warmline Support.

Additional questions? Contact MDF by email at info@myotonic.org or give us a call at 415-800-7777.

Join us for a Virtual Holiday Party!

Sunday, December 13, 2020 12:00 - 1:00 PM PDT

Questions?

Sunday, December 13, 2020
12:00 - 1:00 PM PDT