Virtual Support Group: Kansas City, MO

Join us for a Virtual Meeting of the Kansas City, MO Support Group!

Tuesday, June 22
6:30 - 8:00 PM Central Time

Email SGF John Cooley for a Zoom invitation.

Join support group facilitators John Cooley and Pat Gibson for a Virtual Meeting of the Kansas City, MO Support Group! All people affected by myotonic dystrophy, their families and caregivers in the Kansas City area are invited. We are looking forward to virtually meeting you, sharing our story, hearing yours and developing a long-lasting support group. Join the Facebook Event for this meeting.

Note from John: We are excited to welcome our guest speaker, Michael (Mike) Knaapen, our new Myotonic Dystrophy Foundation (MDF) Program Director! Mike has graciously offered time to the KC group and will bring us up to date on current MDF happenings. Please bring your questions for Mike who has a lot of passion and energy to support all of us and MDF. Meeting agenda:

  • Introductions and touch base
  • Mike Knaapen introduction, discussion and Q & A
  • September 2021 Annual Conference (may be covered by Mike)
  • Hear how you are doing and any stories you want to share
  • Next meeting - planning. When can we meet in person?

Questions? Contact support group facilitator John Cooley by email or by phone at (913)219-5671 or co-leader Patricia (Pat) Gibson by email or by phone at (913)775-0238. Even if you don't RSVP, still join us! To share your contact information with John and Pat, please fill out this form.

We hope to see you soon!

Date(s): 
Tuesday, June 22, 2021

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