Myotonic Dystrophy In Motion

MDF Wants to Help You Move!

Did you know that movement can improve both the physical and mental well-being of persons with myotonic dystrophy? MDF wants to help you move -- whether that looks like walking, biking, swimming, chair-yoga or dancing, or something else entirely for you.

Exercising with Myotonic Dystrophy

Exercise for the Myotonic Dystrophy Community (Video): Understanding the importance of exercise is vital for myotonic dystrophy care. Two physical therapists, Dr. Katy Eichinger and Dr. Tina Duong, will present information on the benefits of exercise can have on DM, recommendations on aerobic activity, types of exercise, monitoring exercise, exercise strategies and finding motivation.

Exercise, Nutrition & Speech (2019 Myotonic Annual Conference): This rehabilitation panel featuring Katy Eichinger, PhD, DPT, Leslie Vnenchak, MA, CCC-SLP, and Robin Meyers, RD, MPH, LDN reviews current research and strategies for managing DM symptoms through exercise, speech and nutrition.

Exercise Guide for Individuals with Myotonic Dystrophy: This guide is written by two physical therapists who are specialized in working with individuals with DM, and includes information on the benefits of exercise for DM, recommendations on aerobic activity, types of exercise, monitoring exercise, exercise strategies and finding motivation.

Role of Physical Therapy in the Assessment and Management of Individuals with Myotonic Dystrophy: Most individuals living with myotonic dystrophy (DM) will probably first encounter a physical therapist in the multidisciplinary clinic where they receive care. These Physical Therapy Guidelines for DM address the role that the physical therapist plays in DM care, including evaluation, education, instructions and physical movement recommendations.

Nutrition Guide for Individuals with Myotonic Dystrophy: This guide is written and reviewed by nutritionists who are specialized in working with individuals with DM, and includes information on diet and DM, managing constipation, being overweight/underweight with DM, managing swallowing problems, feeding tubes, supplements, and sample meals.

Let's Get Moving!

Sit Fit with Nathan Perkins: Former Paralympic athlete, Nathan Perkins, EdD, ACSM-CIFT, will lead the Sit Fit exercise session/workout consisting of a 45-minute non-weighted upper body sit-down exercise routine that will focus on cardiovascular and strength training and range of motion movements through all major joint structures and ligaments.

Adaptive Strength Training with Rach Kahn: The incredible Rach Kahn, NCPT, CSCS, CMT will then begin this class will begin with a warm-up including a body scan, breath work, active-stretching, and joint/spinal mobility work. The intensity will build as we layer on full-body strength training with functional, task-oriented movements, and some balance and coordination exercises. We will wrap up with some grounding movements to calm your nervous system and send you on your way!

 

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