Pat's Record Ride

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Support Patrick Cornell's 125k+ Mile Ride for DM Awareness

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Myotonic Dystrophy News

December 16,2025

2025 Pilot Grant Recipient Feature: Kate Eichinger, PhD

From hands-on care to natural history research and national care guidelines, Kate Eichinger, PhD,has dedicated her career to strengthening function and wellness in the DM community. Her new study uses wearable sensors to uncover subtle changes in gait and balance, offering a new window into how mobility evolves in DM.

December 16,2025

2025 Pilot Grant Recipient Feature: Juan Manuel Fernandez, PhD

With more than 15 years of DM research experience, Juan Manuel Fernandez, PhD, is pioneering work on microRNAs, 3D bioengineered muscle model, and myotonic dystrophy. His new project focuses that expertise on DM2, aiming to create a new model to accelerate drug development.

December 16,2025

2025 Pilot Grant Recipient Feature: David Housman, PhD and Christopher Ng, ScD

David Housman, PhD, and Christopher Ng, ScD, plan to adapt a promising DNA repair enzyme therapy, originally developed for Huntington’s disease, to tackle DM1. With MDF’s support and new collaboration with Dr. Eric Wang’s world renowned lab, this work aims to accelerate both scientific discovery and future therapeutic development.

November 21,2025

MDF Presents 2025 Congressional Advocacy Award to U.S. Senator Chris Van Hollen

MDF advocates met with Members of Congress to advance federal myotonic dystrophy research funding and honor Senator Chris Van Hollen.

October 29,2025

MDF Co-Hosts Bipartisan Congressional Tour to Boost Support for Rare Disease Research

Last month the MDF, a proud member of the National Center for Advancing Translational Sciences (NCATS) Alliance - a coalition of organizations, researchers, and industry partners working to expand federal support for translational science and rare disease research - co-hosted a bipartisan congressional staff tour of the National Institutes of Health (NIH) NCATS laboratories in Bethesda, Maryland.

Questions?

Request Warmline Support! MDF offers a professionally staffed Warmline for people living with myotonic dystrophy, their caregivers, medical professionals and others to ask questions, find support and guidance and, when appropriate, be connected to additional resources and services. Click here to request Warmline Support.

Additional questions? Contact MDF by email at info@myotonic.org or give us a call at 415-800-7777.