Community Favorite

Heart Health - 2019 Myotonic Annual Conference

Heart Health: Understanding DM Cardiac Symptoms with Saman Nazarian, MD, PhD

This session explains how myotonic dystrophy may impact your heart and provides an overview of the cardiac electrical system, common symptoms associated with conduction problems, and preventative measures.

Download the Heart Health Slide Deck.

DM and Genetics Your Questions Answered

Join Certified Genetic Counselor Tiffany Grider from the University of Iowa for an recorded webinar on genetic testing.

Dr. Moxley Retirement 2018

MDF created a short video to recognize and celebrate Moxley’s incredible commitment and impact on the treatment of myotonic dystrophy and scientific discovery to drive disease understanding and therapy development. “Mox” is in many ways irreplaceable, functioning as a singular force in the myotonic dystrophy field for over four decades.

DM Heroes

Watch "DM Heroes", a moving short film about a few heroes in the myotonic dystrophy community.

Sleep Issues Associated with DM

Dr. Chad Ruoff of the Stanford Center for Sleep Science and Medicine discusses common sleep issues associated with myotonic dystrophy, and ways to manage these symptoms.

Myotonic Dystrophy News

January 25, 2023

In Remembrance of Dad: Reynold Wantseng Wang

Written by his son, Dr. Eric Tzy-Shi Wang (王滋熙). My dad had lived with symptoms of myotonic dystrophy for over 30 years. After college, with the encouragement of friends and colleagues, I decided to focus my training and career on better understanding the molecular mechanisms of DM, and it had always been an ambitious goal of mine to find a medicine for my dad. Thus, my dad’s journey ultimately served as a guidepost and motivating factor for my life’s work.

January 25, 2023

Congress Ensures DM Remains Eligible For PRMRP Research Funding For Sixth Year in A Row

DM Researchers Awarded Record $8.8 Million in New Awards In Fiscal Year 2022 Four DM researchers submitted grant applications and two researchers won awards. This represents an excellent 50% success rate for DM! Details on the researchers and research topics will be announced soon. Read more about this increcdible funding opportunity and how you can become a PRMRP Consumer Reviewer!

January 25, 2023

Welcome Sofia Olmos, PhD, Myotonic Dystrophy Family Registry Coordinator

We are overjoyed to welcome Sofia Olmos, PhD, to the team! Sofia’s passion for science, as well as increased direct involvement in patient care communities, makes her a perfect fit for a role that requires both emotional intelligence and a comprehensive scientific knowledge of data storage practices, evaluation, and analysis.

January 25, 2023

Community Interview: Glenda Winson, Guillermo Zubillaga, and Jan Jaffe, New York City MDF Support Group Facilitators

It would be challenging to exist among the fast-paced lifestyle of Manhattan and surrounding boroughs. That is why it is important, especially as a person living with DM, to have support. One place we can seek out that mutual aid is within a support group. And in New York City, look no further, because Glenda, Guillermo, and Jan are the team of cheerleaders you need in the Big Apple.

January 25, 2023

Community Interviews: Jodie Howell & Samantha Welsh, Virginia State MDF Support Group Facilitators

Consciously dedicating hours of their week to support the myotonic dystrophy community, these support group facilitators have decided that they have a higher capacity to contribute. I am quite consistently taken aback by people like Jodie Howell and Samantha Welsh, who are actively involved in their own communities, but have determined that they have a greater threshold to give.

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Community Favorite

Heart Health - 2019 Myotonic Annual Conference

Heart Health: Understanding DM Cardiac Symptoms with Saman Nazarian, MD, PhD

DM and Genetics Your Questions Answered

Dr. Moxley Retirement 2018

DM Heroes

Sleep Issues Associated with DM