A great way to familiarize your members of Congress with DM and your family's story is to give them a packet of information. To find your member of Congress' district office locations, please refer to the House of Representatives or Senate directories. We recommend including the following items in your informational packet:
- Fact sheet on DM
- Information on Myotonic
- A letter to your Representative or Senators urging them to support the 21st Century Cures Initiative
Once you've dropped off the packet to your member of Congress' district office, let us know! We want to reach as many legislators as possible with these important messages.
If you have any questions about this, please contact Leah Hellerstein, Program Director, at leah.hellerstein@myotonic.org or 415-872-7924.