I am a caregiver. My husband, two of my adult children, and my 6 year old grandson all have DM1. Though I’ve been their wife, mother, and grandmother for many years, it’s only recently that I’ve realized how important the title of my role is … caregiver.
MDF advocate Glen Wiggans, MD recently participated in the evaluation of research applications submitted to the Peer-reviewed Medical Research Program (PRMRP) sponsored by the Department of Defense. Glen was nominated for participation in the program by MDF. As a consumer reviewer, he was a full voting member of the review panel, along with prominent scientists, to help determine how the $330 million appropriated by Congress for Fiscal Year 2018 will be spent on PRMRP research.
A tropical paradise was the ideal spot for the 2018 Myotonic Dystrophy Foundation’s (MDF) Annual Gala, November 8th – 10th. MDF supporters from Hawaii and the mainland came together for three days of fun activities, including: casual and competitive bike excursions, a cocktail party on
DTI detects specific changes in the corticospinal tract, reflecting cortical gray matter volume reductions linked to DM1 motor function deficits.
Development, validation, and use of CNS clinical outcome assessments in DM1 must consider their interactions with other parameters of patient functioning.