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10/04/2018 - 10:15am

MDF and our community advocates have again successfully partnered with congressional leaders to include myotonic dystrophy in the Peer-reviewed Medical Research Program (PRMRP) of the U.S. Department of Defense.
 

01/07/2018 - 3:20pm

NIH has reissued the CREATE Bio, Blueprint Neurotherapeutics and NeuroNEXT initiatives, along with other initiatives that focus on biomarker development and clinical trial readiness, to support therapy development efforts.

11/27/2017 - 10:10pm

Make a gift to MDF during our Giving Tuesday campaign and double the impact of your donation! Thanks to the generosity of the Haylon and Lord families, MDF will match all gifts made now through December 5th, up to the first $10,000 raised. Give now and significantly increase your support of Care and a Cure for myotonic dystrophy families around the world!

10/17/2017 - 3:35pm

After a year of outreach and education, MDF has successfully convinced the Social Security Administration (SSA) to list congenital myotonic dystrophy (CDM) in its Compassionate Allowances program, significantly easing the application and review process.

05/25/2017 - 11:19am

MDF held the first myotonic dystrophy (DM) Patient-Focused Drug Development (PFDD) meeting with key senior leaders from the Food and Drug Administration (FDA) as part of the 2016 MDF Annual Conference in September 2016.

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