When Suzanne Perkins’ 16-year-old daughter Eliza had trouble opening jars and closing car doors, she took the teenager to the doctor, confident she would pin the problem on too much texting. But when her doctor sent her to a neurologist, Eliza’s diagnosis came quickly and with a wallop.
A tropical paradise was the ideal spot for the 2018 Myotonic Dystrophy Foundation’s (MDF) Annual Gala, November 8th – 10th. MDF supporters from Hawaii and the mainland came together for three days of fun activities, including: casual and competitive bike excursions, a cocktail party on
MDF is pleased to announce that the first Ann Arbor support group will be held by Suzanne Perkins on October 13th at the Ann Arbor Public Library. Visit the MDF calendar for more information. Thanks to this new addition, MDF now has 22 active support groups.
MDF holds an offsite planning meeting in January every year to look at the Care and Cure landscape for myotonic dystrophy. The annual goals are to identify urgent and high-impact opportunities to improve the quality of life of every person living with this disease while continuing to accelerate the search for therapies.
NINDS announces its intent to issue Funding Opportunity Announcements to support analytical validation of identified candidate biomarkers.