2014 MDF Annual Conference Content

The 2014 MDF Annual Conference occurred in Washington, DC September 12-13 at the Washington Hilton Hotel. The meeting was an incredible opportunity to hear updates from our academic, research and pharmaceutical partners, and take advantage of new and expanded conference offerings. Read a summary of the 2014 Conference.

Advocacy was a key theme at the 2014 MDF Annual Conference. We chose Washington, DC as the location for the 2014 conference to highlight the growing importance of advocacy in advancing Care and a Cure for DM.

For community members who couldn't join us in person, MDF was pleased to provide a livestream broadcast via a link on our homepage starting September 12th.  Livestreaming was available through Saturday, September 13th at 5 PM.

Videos and Powerpoint presentations for all livestreamed sessions are available via the links below. Videos with PowerPoint presentations for the community led track sessions will be uploaded very shortly.

This year MDF offered four themed tracks:

  • Track #1: Grassroots advocacy training so community members could advocate successfully for DM with legislators

  • Track #2: Community-led sessions on a broad array of topics that also promoted networking

  • Track #3: Living with DM sessions led by DM physicians that focused on managing symptoms and improving quality of life

  • Track #4: Juvenile Onset Adults (JOA) program

Thursday, September 11:  Pre-Conference Activities

3:00 PM - 6:00 PM

Pre-Conference Registration

Friday, September 12: Pre-Conference Activities

8:30 AM - 5:00 PM

Registration & Resource Fair

8:30 AM - 12:00 PM

Advocacy Briefing & Congressional Office Meetings

10:00 AM - 11:00 AM

Support Group Facilitators Meeting

11:00 AM - 12:00 PM

TeamMDF Volunteer Program Meeting

11:00 AM - 12:00 PM

Adaptive Yoga

Led by Ariele Foster, PT, DPT, registered yoga teacher.

12:00 PM - 1:00 PM

Break: No Nost Lunch

Friday, September 12: Conference Program Agenda

1:00 PM - 1:30 PM

Conference Welcome

  • Jeremy Kelly, MDF Board Chair;
  • RADM Boris Lushniak, MD, MPH, Acting US Surgeon General

1:30 PM - 2:30 PM

General Session: The One-Hour Activist - Raising Your Voice for DM

Christopher Kush, Soapbox Consulting

2:30 PM - 3:30 PM

General Session: Role of the Federal Government in Advancing DM Science & Care - The FDA & NIH

  • Ron Farkas, MD, PhD, Lead Medical Officer, Division of Neurology Products, FDA (presentation)
  • John Porter, PhD; Program Director, Neurogenetics Cluster, NINDS, NIH (presentation)
  • Moderated by Woodie Kessel, MD, MPH, Assistant Surgeon General (ret.)

3:30 PM - 3:45 PM

Break

3:45 PM - 5:00 PM

General Session: State of the Science - the Next Generation of DM Researchers

5:00 PM - 5:15 PM

Conference Q&A

5:30 PM - 7:30 PM

Welcome Reception & Program

Saturday, September 13: Conference Program Agenda

8:00 AM - 9:00 AM

Breakfast

9:00 AM - 9:50 PM

Advocacy Track

Advocacy Training

Christopher Kush (presentation)

Community Led

Challenges for Juvenile 
Onset Adults: Parent Focus

Living with DM

GI Health

Linda Nguyen, MD (Video) (Presentation)

Ambassadors

JOA General Session: Warm Up Exercise

  • Kathleen Austria;
  • Barry Cohen, PhD

9:30 PM - 9:50 PM

Community Led

Working with Hippotherapy

Living with DM

Vision & Eye Health

Todd Goodglick, MD (Video)

9:50 AM - 10:00 AM

Break

10:00 AM - 10:50 AM

Advocacy

Advocacy Training

  • Elizabeth Florence, JD;
  • Woodie Kessel, MD, MPH
  • (Presentation)

Community Led

Family Planning

  • Hamsa Kiryakoza
  • Steve Kiryakoza;
  • Caroline Easterling
  • (Web Resources)

Living with DM

GI Health

Linda Nguyen, MD (Video) (Presentation)

Ambassadors

JOA Breakout Session By Age Group

  • Kathleen Austria;
  • Barry Cohen, PhD

10:20 AM - 10:40 AM

Community Led

Food Prep for Dysphagia

Living with DM

Vision & Eye Health

Todd Goodglick, MD (Video)

10:40 AM - 10:50 AM

Community Led

Staying Physically Fit

10:50 AM - 11:00 AM

Break

11:00 AM - 11:50 AM

Advocacy

Advocacy Training

Community Led

Maintaining Independence

  • Lindsay Baran;
  • Josh Crowder;
  • Leslie Krongold, EdD
  • (Web Resources)

Living with DM

DM and Emotional Health: Depression and Anxiety

Ambassador

JOA Program Break

JOAs are invited to attend the "Maintaining Independence" or "Beyond ADL" sessions.

11:30 AM - 12:00 PM

Community Led

Caregiver Focus

Living with DM

Beyond ADL: Strategies for Transportation, Work/Life Modifications, Socializing, and More

Cynthia Gagnon, PhD, OT (Video) (Presentation)

12:00 PM - 1:00 PM

Lunch

1:00 PM - 1:50 PM

Community Led

Traveling with DM

Living with DM

DM and Emotional Health: Depression and Anxiety

Ambassador

JOA General Session: JOAs and their Caregivers - Joint Program

  • Kathleen Austria;
  • Barry Cohen, PhD

1:00 PM - 1:50 PM

Community Led

DM2: Focus on Pain Management

Living with DM

Beyond ADL: Strategies for Transportation, Work/Life Modifications, Socializing, and More

Cynthia Gagnon, PhD, OT (Video) (Presentation)

1:50 PM - 2:15 PM

Break

2:15 PM - 3:15 PM

General Session: Advocating in the Clinic: Educating & Supporting Your Doctors

3:15 PM - 4:15 PM

General Session: Beyond Biology - Important DM Research Projects, Conference Q&A

4:15 PM - 4:45 PM

General Session: Isis Clinical Trial Update

Frank Bennett, PhD, Senior Vice President of Research, Isis Pharmaceuticals

4:45 PM - 5:15 PM

Community Updates and Conference Q & A

5:30 PM - 7:00 PM

Dinner & Closing Remarks

Jeremy Kelly, MDF Board Chair

7:30 PM - TBD

Twilight Washington Monuments Tour

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