2020 Myotonic Annual Conference Agenda

Friday, September 13 - Friday, September 13

  • Registration Session
    Friday Registration; Lounge and Coffee
  • Programs
    First Timers' Tea; Juvenile-onset Adult (JOA) Program Friday
  • Programs
    Adaptive Chair Yoga
  • Break
    Break
  • General Session
    Conference Welcome
  • Vendor Session
    Research & Vendor Showcase
  • Programs
    Female Caregivers Roundtable; Going to School with Myotonic Dystrophy: Understanding Special Education & I.D.E.A.; Emergency Preparedness; DM101: Understanding the Disease Basics
  • Programs
    Congenital Caregivers Roundtable; Myotonic Dystrophy & the World of Work; Grassroots Advocacy-MDF Needs You!
  • Programs
    Cardiac Considerations for DM2; Male Caregivers Roundtable; Adaptive Chair Yoga; DM Genetics & Family Planning
  • Break
    Break
  • Social Program
    Welcome Reception & Research Poster Session

Saturday, September 14 - Saturday, September 14

  • Break
    Breakfast
  • Registration Session
    Saturday Registration
  • Registration Session
    Financial Planning & DM; DM Behavioral & Mental Health: Understanding Symptoms & Management Strategies; Listening Room; JOA Program; Research & Vendor Showcase
  • Programs
    Palliative Care: Improving Quality of Life at Every Stage; Pain & DM2: Updated Information on Symptoms & Coping Strategies; Creating Your Clinical Care Team; Exercise, Nutrition & Speech: Enhancing Functional Ability
  • Programs
    Mindfulness as a Disease Management Strategy, DM2 Research Update, DM and Sleep
  • Break
    Lunch
  • General Session
    Heart Health: Understanding DM Cardiac Symptoms
  • General Session
    Patients Report Out: Living with DM Over 50
  • Break
    Conference Challenge
  • Break
    Break
  • General Session
    Industry Updates (Additional Companies TBD)
  • General Session
    Myotonic Passport Prize Drawing
  • General Session
    Q&A
  • Break
    Cocktail Hour
  • Social Program
    Closing Dinner & Dance Party

Friday, September 11 - Friday, September 11

  • Registration Session
    Registration
  • Social Program
    Networking & Listening Lounge; Vendor Showcase; JOA
  • Break
    Break
  • General Session
    Conference Welcome
  • General Session
    DM101; Special Needs Legal Issues; Male Caregivers Roundtable; Female Caregivers Roundtable; Vendor Showcase; JOA
  • General Session
    Genetics; Pain Managment; Congenital Caregivers Roundtable; DM2 Meet & Greet
  • General Session
    Common Complications; Adaptive Tips & Tricks; The Arc; Caring for the Caregiver
  • Break
    Break
  • Poster Session
    Welcome Reception and Poster Session

Saturday, September 12 - Saturday, September 12

  • Social Program
    Breakfast
  • Registration Session
    Registration
  • General Session
    DM2 Cognitive; Adult Neuromuscular; Yoga; Pediatric Neuromuscular; JOA; Vendor
  • Break
    Lunch Break
  • General Session
    Occupational Therapy
  • General Session
    Pulmonary and Sleep
  • General Session
    Industry Updates
  • General Session
    Conference Q&A
  • Social Program
    Cocktail Hour
  • Social Program
    Closing Dinner & Dance Party