MDF is providing an opportunity to request financial support to attend a Regional Conference in person this year. MDF Scholarships can award up to $750 in reimbursement and can cover: travel (including airfare, rental car, or mileage reimbursement), lodging, parking, local transportation (including Taxi & Rideshare), and travel day meals. Priority will be given to applications for first-time in-person attendees. Download the full MDF Scholarship policy to learn more about allowable expenses.

If you are waiting for a response or have questions about MDF Scholarships, please contact MDF’s Community Education Manager, Emily Romney, at emily.romney@myotonic.org.

Please Note: All Scholarships have been awareded for our Conferences in Gainesville, FL, Boston, MA, and Los Angeles, CA. If you are still interested in a Scholarship for these locaitons, please apply to join the waitlist using the form below in case someone is no longer able to accept their award or additional scholarship funding becomes available.

MDF Regional Conference Scholarship Application

Please note, all questions marked with an * require a response.

Regional Conference Location *

First Name *

Last Name *

Email *

Phone *

Street *

City *

State/Province *

Zip *

Country *

My topic(s) of interest are (select all that apply): *

Please check this box if thi is this your first in-person MDF event (Annual Conference, DM Day, etc.)?

Please share why you would like to attend a 2024 MDF Regional Conference. Specifically, what do you hope to gain through your conference experience? *

What is your primary connection to myotonic dystrophy? *

What is your total household income? This information will not be saved, stored, or shared but will be used to determine financial need. (For US applicants, it may be easiest to use your tax form information, for example your line 11 total on Form 1040/-SR from 2022 or 2023.) *

How many people live in your household? *

Please check this box if you would you like to attend other Regional Conference adjacent activities prior to the Conference if applicable (e.g., tour of a research facility, Advocacy pizza night, tour of a clinic, etc.)?

Please add any additional information that should be considered with your MDF Scholarship Application.

I acknowledge and confirm that I have read the full scholarship information and rules document and understand the terms should I be awarded a scholarship. *

Myotonic Dystrophy News

April 30,2024

MDF Sponsors & Attends the 2024 International Myotonic Dystrophy Consortium Meeting

MDF is proud to report on its sponsorship and participation in the prestigious 14th International Myotonic Dystrophy Consortium Meeting (IDMC-14) held in Nijmegen!

April 30,2024

Thank You Advocates, 11 U.S. Representatives Sign DM Research Letter

Over the past several weeks, MDF advocates asked their Representatives to sign the Kiggans Moskowitz Letter urging the House Appropriations Defense Subcommittee to include $10m for peer-reviewed myotonic dystrophy research funding as part of the CDMRP.

April 30,2024

Research Fellow Feature: Betty Bekele

Rotations in labs studying movement disorders and anxiety-like behavior Ms. Bekele to Dr. Gary Bassell's Lab, where she immersed herself in DM1 research. However, her vision extends beyond research, aiming to build her global network supporting professionals, caregivers, and patients affected by DM.

April 28,2024

Early Career Research Grant Feature: Dr. Tahereh Kamali

With degrees from Shiraz University a PhD from the University of Waterloo, Dr. Tahereh Kamali has a strong background in computer science and systems design engineering. Since joining Stanford's Department of Neurology, she has focused on exploring the effects of myotonic dystrophy on the central nervous system.

April 28,2024

Participants Needed for Research Study for Women with DM

Learn about a new research study at the University of Rochester called, “Sexual and menstrual function in Women with Myotonic Dystrophy and Facioscapulohumeral muscular dystrophy", conducted by Dr. Johanna Hamel and Jeanne Dekdebrun.

Questions?

Request Warmline Support! MDF offers a professionally staffed Warmline for people living with myotonic dystrophy, their caregivers, medical professionals and others to ask questions, find support and guidance and, when appropriate, be connected to additional resources and services. Click here to request Warmline Support.

Additional questions? Contact MDF by email at info@myotonic.org or give us a call at 415-800-7777.

Scholarship Application: 2024 MDF Regional Conferences

MDF Regional Conference Scholarship Application