Community Voices and Inspiration

"Hands" featuring Eric Hutchinson

Award-winning recording artist & Myotonic community member Eric Hutchinson released the song "Hands" on his new album "Modern Happiness" in partnership with Myotonic! Eric developed the song & video to share his family story & help raise awareness about DM & critically-needed funds for the Myotonic. Directed by Doug Thomsen and Adam Behrmann.

Living with DM: The Community Speaks

Myotonic community members speak about the impact that living with DM has on their lives.

Hope & Inspiration: Myotonic Community Voices

Family members, caregivers and researchers describe their experiences living with myotonic dystrophy and research advances creating hope for the future.

Consensus-based Care Recommendations: What Do They Mean for You? (2018 MDF Annual Conference)

Myotonic is asking our community members to help educate their doctors about the care recommendations, and we'll show you how. Watch DM doctors and community members act out entertaining skits that will explain what to say to your doctors during your doctors visits. These skits will include a twist: affected community members will be the doctors and doctors are patients in these hilarious educational vignettes.

Living with DM: Patients Report on Changes Over Time (2018 MDF Annual Conference)

This interactive panel session was presented in a similar format to the Patient-Focused Drug Development meeting presented by MDF as a part of the 2016 MDF Annual Conference, and the CNS Endpoint Development discussion presented at the 2017 MDF Annual Conference.

Dr. Moxley Retirement 2018

MDF created a short video to recognize and celebrate Moxley’s incredible commitment and impact on the treatment of myotonic dystrophy and scientific discovery to drive disease understanding and therapy development. “Mox” is in many ways irreplaceable, functioning as a singular force in the myotonic dystrophy field for over four decades.

Jeremy and Erica Kelly Tribute Video

A special tribute to Jeremy and Erica Kelly of Myotonic.

DM Heroes

Watch "DM Heroes", a moving short film about a few heroes in the myotonic dystrophy community.

Myotonic Dystrophy News

December 23, 2020

COVID-19 Vaccines and the DM Community

In response to the many questions received by MDF regarding the COVID-19 vaccines, MDF’s medical advisory panel has prepared the following FAQs.

December 19, 2020

Year End Message from Our CEO

On behalf of the MDF Board of Directors and staff, I would like to thank you for helping make 2020 a triumphant year. During a year full of surprises and unknowns, when it is easy to recall the challenges we have all experienced, I am especially proud of the major transitions we have made together. Our community has shown incredible resilience, innovation, and flexibility.

December 19, 2020

Tom McPeek: Staying Positive

MDF is excited to announce Tom McPeek's appointment to our Board of Directors! Tom has been an active member of the MDF community for over 10 years. Find out more about Tom, his family, and his work in the DM community.

December 19, 2020

Meet the DM Drug Developers

Each month until the MDF Annual Conference in September, biotechnology and pharmaceutical partners, large and small, working on treatments and a cure for myotonic dystrophy will sit down with our community to share their progress and answer your questions.

December 19, 2020

Stump-the-Expert Series

Do you have questions for DM doctors and therapists? Join us in 2021 for a series of “Stump-the-Expert” sessions with DM clinicians in diverse specialties.

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Community Voices and Inspiration