April 2025
- Register for Our 2025 Ask the Expert Webinar Series!
- July is DM In Motion Awareness Month - Save the Date for Our Weekly Events!
- Join the MDFR or update your information today!
- Explore our Sneak Peek of the 2025 Conference!
- DM Researchers: Apply for MDF's 2026 Funding Opportunities!
- Meet the Fellow: Cécilia Légaré, PhD
- Meet the Fellow: Diana Alejandra Madrid Fuentes, MSc
- Early Career Scholar Feature: Louison Daussy, MSc
- Avidity Biosciences Receives Orphan Drug Designation in Japan for Del-desiran!
- Golf for a Good Cause! Support the Andrew Gulch Memorial Golf Outing!
- #RAREis College Scholarship Fund by the Everylife Foundation
- Share Your Feedback - Participate in MDF's Website Focus Group!
- April 2025 Updates to the Drug Development Pipeline!
- Mark Your Calendar for the 2025 MDF Gala on September 18th!
- Learn More About DM Research & Federal Funding
- MDF Attends the 2025 MDA Clinical & Scientific Conference
March 2025
- Watch our Sneak Peek of the 2025 Conference & Join us Virtually!
- Learn More About DM Research & Federal Funding
- Community Interview: Barbara, MDF Support Group Facilitator
- Applications Open for MDF's 2026 Research Funding Opportunities!
- Early Career Scholar Feature: Łukasz Jakub Sznajder, PhD
- Early Career Scholar Feature: Scott Uhlrich, PhD
- Young DM Investigators - Watch a Webinar on the DM Funding Landscape!
- Join Avidity Biosciences' Patient & Care Partner Advisory Council!
- PepGen Announces Positive Initial Results in FREEDOM-DM1 Trial!
- #RAREis College Scholarship Fund by the Everylife Foundation
- Share Your Feedback - Participate in MDF's Website Focus Group!
- Let the World Hear From You - Join the Myotonic Dystrophy Family Registry!
- Mark Your Calendar for the 2025 MDF Gala on September 18th!
- Watch Now: Understanding Myotonic Dystrophy – Inheritance of DM1!
February 2025
- Watch Now: Understanding Myotonic Dystrophy – Inheritance of DM1!
- Get Ready for Rare Disease Day!
- February is Heart Health Month!
- Let the World Hear From You - Join the Myotonic Dystrophy Family Registry!
- Mark Your Calendar for the 2025 MDF Gala on September 18th!
- Recent Study on Burden of DM Healthcare Costs
- Young Investigators Join us for a Webinar on the DM Funding Landscape on March 13th!
- Research Fellowship Feature: Haneui Bae, PhD
- Research Fellowship Feature: Emily Davey, BS
- Watch the Recording - Advocate for Federal DM Research Funding in the US!
- Watch the DM Drug Developers with Dyne Therapeutics!
- In Remembrance of Scott Virgo, MDF Support Group Facilitator!
- The 2025 Conference Community and Professional agendas are now available!
- Stop by & Say Hello at the 2025 MDA Conference!
- Muscular Dystrophy Canada Launches Initiative to Improve Genetic Testing Access for DM
- IGTP Secures Funding to Establish National DM Research Network in Spain
January 2025
- Happy New Year from MDF!
- Join us on February 7th for Meet the DM Drug Developers with Dyne Therapeutics!
- Join us for an Advocate Training on February 11th!
- January is International Quality of Life Month!
- MDF Board of Directors Approves Over $1 Million in Myotonic Dystrophy Research Funding!
- Research Pilot Grant Feature: Belinda Pinto, PhD
- Research Pilot Grant Feature: Emma Matthews, FRCP
- 2025 MDF Conference Agenda Now Available!
- Calling All DM Professionals - Submit a Poster Abstract to the 2025 MDF Conference by February 7th!
- Apply for a 2025 MDF Grant by January 24th!
- Nouveau: Groupe de Soutien International Pour les Francophones!
- Get Ready for Rare Disease Day!
- Check out PepGen's Latest Advocacy Newsletter!
- Let the World Hear From You - Join the Myotonic Dystrophy Family Registry!