Digital Academy
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Accelerating The Search For Therapies: What's Happening, What's Next (2018 MDF Annual Conference) |
Dr. Elizabeth Ackermann reports on the results of the 3-year MDF and Wyck Foundation-funded drug development acceleration effort, MDF 3.0, and introduces MDF’s new initiative, MDF 4.0, including the $1M gene editing project, the Myotonic Dystrophy Clinical Research Network study and other aggressive therapy development programs. Click here for more presentations and videos from the 2018 MDF Annual Conference in Nashville, TN. |
10/4/18 | video |
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Consensus-based Care Recommendations: What Do They Mean for You? (2018 MDF Annual Conference) |
MDF has recently published Consensus-based Care Recommendations for Adults with DM1 in Neurology Clinical Practice online September 13. Now we need to make sure that every clinician treating a DM patient has them and is using them – and we need your help! MDF is asking our community members to help educate their doctors about the care recommendations, and we'll show you how. Watch DM doctors and community members act out entertaining skits that will explain what to say to your doctors during your doctors visits. These skits will include a twist: affected community members will be the doctors and doctors are patients in these hilarious educational vignettes. Facilitator: Jacinda Sampson, MD, PhD, Stanford University Find a write up on the DM1 Care Recommendations here. Click here to download the Clinic Visit Planner. Background PowerPoint Presentation Click here for more presentations and videos from the 2018 MDF Annual Conference in Nashville, TN. |
11/2/18 | video |
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Dr. Gagnon - Strategies For Managing Progression (2018 MDF Annual Conference) |
Current strategies for managing disease progression and maintaining quality of life, including the latest in tools and resources. Speaker: Click here for more presentations and videos from the 2018 MDF Annual Conference in Nashville, TN. |
11/2/18 | video |
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Conference Q&A (2018 MDF Annual Conference) |
A panel of clinical and research experts will answer community member questions that have been submitted throughout the conference. Panelists include: Click here for more presentations and videos from the 2018 MDF Annual Conference in Nashville, TN. |
10/3/18 | video |
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Locana - Industry Updates On Drug Development (2018 MDF Annual Conference) |
Representatives from biotech and pharma companies will provide updates on their drug development efforts in the DM field. Speaker: Click here for more presentations and videos from the 2018 MDF Annual Conference in Nashville, TN. |
10/4/18 | video |
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Ionis Pharmaceuticals - Industry Updates On Drug Development (2018 MDF Annual Conference) |
Representatives from biotech and pharma companies will provide updates on their drug development efforts in the DM field. Speaker: Click here for more presentations and videos from the 2018 MDF Annual Conference in Nashville, TN. |
10/4/18 | video |
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Expansion Therapeutics - Industry Updates On Drug Development (2018 MDF Annual Conference) |
Representatives from biotech and pharma companies will provide updates on their drug development efforts in the DM field. Speaker: Click here for more presentations and videos from the 2018 MDF Annual Conference in Nashville, TN. |
10/4/18 | video |
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AMO Pharma Ltd. - Industry Updates On Drug Development (2018 MDF Annual Conference) |
Representatives from biotech and pharma companies will provide updates on their drug development efforts in the DM field. Speaker: Click here for more presentations and videos from the 2018 MDF Annual Conference in Nashville, TN. |
10/4/18 | webinar |
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Dr. Dixon - Strategies For Managing Progression (2018 MDF Annual Conference) |
Current strategies for managing disease progression and maintaining quality of life, including the latest in tools and resources. Speaker: Click here for more presentations and videos from the 2018 MDF Annual Conference in Nashville, TN. |
11/2/18 | video |
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Living with DM: Patients Report on Changes Over Time (2018 MDF Annual Conference) |
This interactive panel session was presented in a similar format to the Patient-Focused Drug Development meeting presented by MDF as a part of the 2016 MDF Annual Conference, and the CNS Endpoint Development discussion presented at the 2017 MDF Annual Conference. Panelists discussed the disease symptom changes they have experienced living with myotonic dystrophy, followed by facilitated audience participation. This session is intended to amplify and deepen our understanding of disease changes and progression from the perspective of individuals and families living with DM. Moderated by Charles Thornton, MD, University of Rochester Click here for more presentations and videos from the 2018 MDF Annual Conference in Nashville, TN. |
11/2/18 | video |
