Digital Academy
| Preview | Title | Date | Type | |
|---|---|---|---|---|
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Living with DM2 |
Dr. Matt Disney and Dr. John Day provide an overview of the DM2 disease mechanism and describe how compounds can be designed as potential therapies for this disease. |
4/16/18 | video |
 |
Food Prep for Dysphagia (2014 MDF Annual Conference) |
Community-led session presented by Regina Thompson and Jessica Nussbaum. Two caregivers discuss different ways of preparing food for those with dysphagia. |
5/16/19 | video |
 |
DM Sleep Disorders: Updated Research and Management Strategies |
Dr. John Day of Stanford University presents an overview of brain-related DM impacts that can affect sleep, and current thinking regarding strategies to manage this very prevalent DM symptom. From the 2017 MDF Annual Conference. |
4/16/18 | video |
 |
Cardiac Issues Related to DM |
Dr. William Groh, MD, of the Crannert Institute of Cardiology at Indiana University, explains how DM may impact your heart, and gives an overview of the cardiac electrical system, common symptoms associated with conduction problems, and preventative measures. |
4/16/18 | video |
 |
Hormone Issues Associated with DM1 & DM2 |
Dr. Richard Moxley of the University of Rochester addresses different endocrine problems that challenge patients with mytonic dystrophy types 1 & 2, how they can lead to symptoms and be associated with alterations in blood test measurements, known treatments to mitigate potential symptoms and future opportunities to develop better understanding of these endocrine problems. |
4/16/18 | video |
 |
DM and Mental Health: Managing Anxiety, Depression and Other Symptoms |
Dr. Melissa Dixon of the University of Utah discusses mental health challenges and symptoms sometimes experienced by people living with DM, and strategies for coping with everything from depression to anxiety and 'brain fog' From the 2017 MDF Annual Conference. |
4/16/18 | video |
 |
Webinar: Decline of Executive Function of the CNS |
As the inaugural presentation in our Living with DM Webinar series, we discuss the decline of executive function in the CNS due to myotonic dystrophy, as well as strategies for managing this symptom, and an update on current CNS research. |
11/2/18 | video |
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Everything You Wanted to Know About CTG Repeats |
Dr. Darren Monckton explains the current research concerning the significance of CTG repeats for persons with DM1. |
4/16/18 | video |
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Strategies for Motivating your Juvenile-Onset Adults (2015 MDF Annual Conference) |
Community members discuss daily living strategies for motivating their adult children living with juvenile-onset DM1. |
5/16/19 | video |
 |
DM and Dental Care: the Neglected Health Risk |
Darcy Trill, RDHAP, mobile dental hygenist who specializes in the treatment of people with disabilities and special needs in their homes, provides a compelling overview of the risks of ignoring dental health for DM patients, and strategies for achieving and maintaining oral health. From the 2017 MDF Annual Conference. |
4/16/18 | video |
