Respiratory dysfunction in DM1 draws new attention.
Daily activities and social participation are assessed in a longitudinal study of DM1.
Dr. Melissa Dixon at the University of Utah Department of Pediatrics is conducting a study to learn more about how congenital myotonic dystrophy (CDM) and childhood-onset myotonic dystrophy affect thinking, memory, attention, brain function, and how these processes change over time.
A large natural history study of children with DM1 may form the background for subsequent development of evidence-based case management guidance.
A new review article synthesizes published data on health-related quality of life in adult-onset DM1.