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Digital Academy

Preview Title Date Type
Challenges of DM

People living with myotonic dystrophy have a frank discussion about the biggest challenges facing their lives.

4/16/18 video
Jeremy and Erica Kelly Tribute Video

A special tribute to Jeremy and Erica Kelly of the Myotonic Dystrophy Foundation.

4/26/18 video
Patient-Focused Drug Development Meeting, Part 1 (2016 MDF Annual Conference)

Watch Patient-Focused Drug Development Meeting, Part 1, a video from the 2016 MDF Annual Conference.

7/11/18 video
Understanding SSA Compassionate Allowance for CDM

In 2017, MDF finally achieved one of its goals for the community when congenital myotonic dystrophy was added to the Compassionate Allowance Program for Social Security Disability. Join us for an informational webinar with SSA representative Deborah Dennis, who will explain how this new development affects the DM community and what will change in the application process going forward.

5/17/19 video
Pain and DM2

A father and son living with myotonic dystrophy type 2 describe the unique pain they experience with this disease.

6/29/18 video
Dr. Moxley Retirement 2018

MDF created a short video to recognize and celebrate Moxley’s incredible commitment and impact on the treatment of myotonic dystrophy and scientific discovery to drive disease understanding and therapy development. “Mox” is in many ways irreplaceable, functioning as a singular force in the myotonic dystrophy field for over four decades.

5/15/19 video
Traveling with DM (2014 MDF Annual Conference)

Community-led session led by Elizabeth Florence and Loraine Dressler. This presentation discusses best practices for traveling with those living with DM.

5/17/19 video
Patient-Focused Drug Development Meeting, Part 2 (2016 MDF Annual Conference)

Watch Patient-Focused Drug Development Meeting, Part 2, a video from the 2016 MDF Annual Conference.

10/26/18 video
DM Heroes

Watch "DM Heroes", a moving short film about a few heroes in the MDF community.

10/26/18 video
DM & Anticipation, Part 1

Dr. Darren Monckton describes anticipation in myotonic dystrophy, the process by which the disease increases in severity as it is passed from generation to generation.

5/15/19 video

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