Digital Academy
| Preview | Title | Date | Type | |
|---|---|---|---|---|
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Challenges of DM |
People living with myotonic dystrophy have a frank discussion about the biggest challenges facing their lives. |
4/16/18 | video |
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Jeremy and Erica Kelly Tribute Video |
A special tribute to Jeremy and Erica Kelly of the Myotonic Dystrophy Foundation. |
4/26/18 | video |
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Patient-Focused Drug Development Meeting, Part 1 (2016 MDF Annual Conference) |
Watch Patient-Focused Drug Development Meeting, Part 1, a video from the 2016 MDF Annual Conference. |
7/11/18 | video |
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Understanding SSA Compassionate Allowance for CDM |
In 2017, MDF finally achieved one of its goals for the community when congenital myotonic dystrophy was added to the Compassionate Allowance Program for Social Security Disability. Join us for an informational webinar with SSA representative Deborah Dennis, who will explain how this new development affects the DM community and what will change in the application process going forward. |
5/17/19 | video |
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Pain and DM2 |
A father and son living with myotonic dystrophy type 2 describe the unique pain they experience with this disease. |
6/29/18 | video |
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Dr. Moxley Retirement 2018 |
MDF created a short video to recognize and celebrate Moxley’s incredible commitment and impact on the treatment of myotonic dystrophy and scientific discovery to drive disease understanding and therapy development. “Mox” is in many ways irreplaceable, functioning as a singular force in the myotonic dystrophy field for over four decades. |
5/15/19 | video |
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Traveling with DM (2014 MDF Annual Conference) |
Community-led session led by Elizabeth Florence and Loraine Dressler. This presentation discusses best practices for traveling with those living with DM. |
5/17/19 | video |
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Patient-Focused Drug Development Meeting, Part 2 (2016 MDF Annual Conference) |
Watch Patient-Focused Drug Development Meeting, Part 2, a video from the 2016 MDF Annual Conference. |
10/26/18 | video |
 |
DM Heroes |
Watch "DM Heroes", a moving short film about a few heroes in the MDF community. |
10/26/18 | video |
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DM & Anticipation, Part 1 |
Dr. Darren Monckton describes anticipation in myotonic dystrophy, the process by which the disease increases in severity as it is passed from generation to generation. |
5/15/19 | video |
