December 2020
- Year End Message from Our CEO
- Tom McPeek Joins MDF Board of Directors
- COVID-19 Vaccines and the DM Community
- Genetic Treatment Plus Exercise Reverses Fatigue in Mice with Muscle Wasting Disease
- Help our DM Community Find a DM Expert
- MDF Announces 5 New Research Fellowships
- New in 2021: Meet the DM Drug Developer Series
- DM Strength Training with Rachel Kahn: Recordings Available!
- DM Toolkits & Resources
- Join the Myotonic Dystrophy Family Registry!
- MDF is Hiring!
- My Featured Content: Help us close out a truly unprecedented year as we look toward the future of MDF!
November 2020
- The 2020 Virtual Gala was a Massive Success!
- Back by Popular Demand! Strength Training Series with Rachel Kahn
- Supporting Myotonic Dystrophy through Biobank Sample Donations – A Family Affair
- Twist on CRISPR Gene Editing Treats Adult-Onset Muscular Dystrophy in Mice
- Advocacy Update: the Affordable Care Act and the Supreme Court
- You're Invited to a Virtual Holiday Party!
- The Translational Genomics Group Takes microRNA Approach
- #SocksOnChallenge!
- Get Ready for #GivingTuesday!
- Inspector General Warns About New Social Security Benefit Suspension Scam. Watch the 60 second PSA on YouTube.
- My Featured Content: Support MDF with your Holiday Shopping on AmazonSmile!
October 2020
- Reflections on Successful MDF Virtual Family Conference
- Join us for the 2020 Virtual Gala Next Friday!
- Summer Volunteer Finishes US Financial Resources Suite!
- Join the Myotonic Dystrophy Family Registry!
- Connect with MDF Support Group Facilitators & Find Upcoming Meetings
- MDF Advocates are the Key to a Cure
- JOA Connections with Support Group Facilitator Ann Woodbury
- Register for the (VIRTUAL) 5th Annual UPIN Family Conference!
- My Featured Content: Access Recorded Virtual Conference Sessions on the MDF Digital Academy!
August 2020
- Myotonic Dystrophy Foundation Brand Refresh
- Conference Registration is now Available!
- We Want to Hear from You!
- MDF is thankful for our Incredible Support Group Facilitators!
- New DM Resource: Guide for JOAs and their Caregivers
- How a Couple that Dreamed of Travel Found a Way Around DM
- Research Participation Opportunity: DM1 & DM2 in New England:
- Community Advocate Participates in Third PRMRP Review
- You're Invited to Connect with Industry Partners working on DM Therapies
- 2020 Virtual Gala: Save the Date!
- My Featured Content: Access our video catalog on the MDF Digital Academy!
July 2020
- The Myotonic Annual Conference is Going Virtual!
- Sign Up for the Advocacy Workshop this Monday, 7/20!
- We Want to Hear from You!
- New Myotonic Dystrophy Resources Available:
- PREFER Project: DM1 Survey!
- DM2 Research Opportunity in North Carolina!
- 2020 Virtual Gala: Save the Date!
- Lucie Griffiths: Community Moderator Q&A
- Joel Revill: Journey to the Myotonic Board
- Questions about Nutrition & DM?
- My Featured Content: Join our Virtual Community Groups!
June 2020
- A Message from Myotonic's CEO on Resilience
- Midyear Survey: Let Us Know What You Think!
- Don't Miss our Last Friday Afternoon Webinar!
- Cooking Video Contest: Congratulations Dean & Jay!
- Progress in the Congressional Campaign to Increase Funding for DM Research! Join the Advocacy Workshop!
- Myotonic Dystrophy iPSC Library & Drug Development Pipeline!
- New Myotonic Dystrophy Resources Available!
- A Mother's Story - Elizabeth Florence
- Thank You Serena Master! 2019-2020 Myotonic Intern
- My Featured Content: Help drive care and a cure with the Myotonic Grassroots Fundraising Toolbox
May 2020
- Myotonic is Moving to a New Location!
- New Friday Afternoon Webinars!
- Cooking Video Contest: Food Preparation for the DM Community!
- Share your Gratitude!
- Take a Break! An Introduction to Mindfulness & Guided Meditation
- Have you met Miles the Myotonic Lion?
- Participate in 2 Research Surveys: Newcastle University: The PREFER Project and University of Rochester: A Patient-Focused Survey to Assess the Effects of the COVID-19 Pandemic on Patients with Muscular Dystrophy
- 2021 Request for Fellowship Applications
- My Featured Content: Myotonic Grassroots Fundraising Toolbox
April 2020
- Friday Afternoon Webinar Series
- Myotonic Publishes Clinical Care Recommendations for Pulmonologists
- New Resources Available!
- April Advocacy Update
- The Herbert Family's Journey
- Join the Myotonic Dystrophy Family Registry
- Financial Resource Guides Available!
- My Featured Content: Stay connected with Virtual Community Groups!
March 2020
- A Message from Myotonic's CEO about COVID-19
- Myotonic Publishes Clinical Care Recommendations for Cardiologists
- Congressional Leadership Award & Advocacy Update
- 2020 Research Fellows Announced
- Medical School Roadshow visits UC Irvine
- Rare Disease Day Report
- Massive Success for Topgolf Tournament for Myotonic
- My Featured Content: Stay connected with Virtual Community Groups!