December 2022
- MDF Board of Directors Approves Over $1 Million in Funding for 2023 Research Grants & Fellowships
- Avidity Biosciences Announces Data Demonstrating First-Ever Successful Targeted Delivery of RNA to Muscle
- Community Interview: Peter Ingraham
- Community Interview: Sarah Berman
- Clinical and Molecular Insights into Gastrointestinal Dysfunction in Myotonic Dystrophy Types 1 & 2
- ¡Nuevo documento! El Planificador de Visita Médica
- Participate in DM Research - Join the Myotonic Dystrophy Family Registry!
- All 2022 MDF Annual Conference Photos Available Now!
- Join the Global Alliance for Myotonic Dystrophy Awareness!
- Support MDF for the Holidays!
- Jennifer Kang Joins MDF as Public Health Intern
- My Featured Content: Volunteer & Career Opportunities with MDF!
November 2022
- MDF Gala Breaks Fundraising Record!
- MDF Shares 2021 Annual Report
- US Government Recognizes International Myotonic Dystrophy Awareness Day
Thank you for your support to make this public recognition of the DM Community possible: - Meet Ruth Sheldon, MDF's Health Resources Coordinator
- 2022 MDF Annual Conference Session Recordings Available Now
- Myotonic Dystrophy: GABA Receptors Implicated in Sleepiness, via Mouse Model
- Ophthalmologists Can Play a Crucial Role in the Early Diagnosis of DM1
- Get Connected with MDF Support Groups:
- Medicare Open Enrollment - Now Until December 7:
- Rock Your Myotonic Dystrophy Awareness Gear!
- Are You Ready for the Giving Season?
- My Featured Content: Volunteer & Career Opportunities with MDF!
September 2022
- Support Community, Care, and a Cure at the 2022 MDF Gala!
- DM Community Reunites at the 2022 MDF Annual Conference
- Industry Updates Available - More Session Recordings Coming Soon!
- The World Recognizes Myotonic Dystrophy on Sept 15!
- Learn about how you can help advance our Shared Areas of Focus!
- Use your voice to improve the future of DM care & research!
- Explore International Myotonic Dystrophy Awareness Day Activity on Social Media:
- Opportunity for Adults with DM2 to Participate in a Research Study!
- Show You're Part of the Team - Order Your Myotonic Dystrophy In Motion Gear Today
- Data Supports the Potential of PepGen’s Enhanced Delivery Oligonucleotide (EDO)
- Apply for MDF Fall & Winter Internships!
- My Featured Content: Volunteer & Career Opportunities with MDF!
August 2022
- Join the 2022 MDF Annual Conference Online!
- Apply for a 2023 MDF Research Fellowship or Grant!
- Ask-the-Expert: Disability Rights, Future Planning & Special Needs Trusts
- Celebrate International Myotonic Dystrophy Awareness Day!
- Harmony Biosciences Updates 10 Sites in DM1 Study
- Avidity Bioscienes Enrolls Patients in the MarinaTM Open Label Extension Study
- MDF Community Member Nick Gulch Receives #RAREis Scholarship Award
- Community Interview: Kristen McClintock
- Save the Date for the 2022 MDF Gala in NYC!
- My Featured Content:
July 2022
- 2022 MDF Annual Conference:
- Apply for a 2023 MDF Research Fellowship or Grant:
- In Case You Missed It! Discover the DM Research Map
- Welcome MDF's Newest Board Member, Haley Martinelli, Esq.!
- Summer Interns at MDF
- Celebrate International Myotonic Dystrophy Family Day on July 23rd
- Meet the DM Drug Developers:
- Ask-the-Expert: Disability Rights, Future Planning & Special Needs Trusts - Aug19th
- Bolt Family Raises DM Awareness in Annual Seattle to Portland Ride!
- A Support Group for Defying the Odds: DM1 Over 50
- COVID-19 & Muscular Dystrophy Article Published in the Journal of Neuromuscular Diseases
- DM Publication Makes Cover of Science Translational Medicine
- Dyne Therapeutics Announces Clearance of Clinical Trial Application for DYNE-101 for the Treatment of DM1
- Openings for PhD Graduates, Postdocs, & Scientists with Experience with DM
- My Featured Content:
June 2022
- 2022 MDF Annual Conference:
- Anesthesia Guidelines Now Available in German
- Discover the DM Research Map!
- Welcome Mounica Lakshmi Dugginapeddi, MPH Community Programs Coordinator!
- DM Research Fellow Feature - Christina Heil, PhD
- DM Research Fellow Feature - Research Fellow Feature: Preeti Kumari, PhD
- Community Interview: Cindy Hubert
- Ask-the-Expert: DM & Palliative Care - July 15th
- Meet the DM Drug Developers
- Celebrate Families Day at IDMC-13
- Watch the Recording! Ask-the-Expert: A Community Portrait through Surveys and Insurance Claims Data
- My Featured Content:
May 2022
- 2022 MDF Annual Conference:
- Myotonic Dystrophy In Motion
- Brito Family Celebrates World Bonsai Day with MDF
- MDF Advocates Unite to Increase DM Research Funding
- Requests for 2023 Research Fellowships & Grant Applications
- Community Interview: Sammy Ochoa
- Register for Our Upcoming Webinars:
- Healthy Living Discussion Group - Creating a Movement Practice - June 14
- Celebrate Families Day at IDMC-13
- My Featured Content:
April 2022
- Early Registration for the MDF Annual Conference Opens April 25th!
- Ask-the-Expert: Key Neuropsychological Features of DM1
- Belen Esparis, MD, Elected to MDF Board of Directors
- Learn How You Can Advocate for Federal Myotonic Dystrophy Funding
- MDF Welcomes Volunteer Writers Barbara & Samantha Ochoa
- Register for Meet the DM Drug Developers: Avidity Biosciences on July 1st
Avidity Biosciences Announces Summer Internship Program: - Join us on Oct. 20th, for the 2022 MDF Gala!
- DM Research Fellow Feature - Avery Engelbrecht
- DM Research Fellow Feature - Xiaomeng "Belle" Xing
- Celebrate Families Day at IDMC-13
- In Memory of Gilbert Gottfried
- #RAREis College Scholarship Fund by the Everylife Foundation
- MDF Board of Directors Approves 2021-2024 Strategic Plan
- My Featured Content:
March 2022
- Save-the-Date for the MDF Annual Conference - Sept. 9th & 10th
- Register for Ask-the-Expert: DM2 & Managing Pain on March 18th
- MDF & Marigold Foundation Report on DM & Insurance:
- Register for Meet the DM Drug Developers: Dyne Therapeutics on April 1st
- MDF Launches National Advocacy Committee (NAC)
- MDF Gathers Parents & Guardians of Children Living with DM
- Healthier Living Discussion Group Continues to Grow!
- DM Research Fellow Feature - Lily Cisco
- DM Research Fellow Feature - Jesus Frias
- Volunteer & Career Opportunities with MDF!
- My Featured Content: Look good, feel good! Rock Your Myotonic Dystrophy Awareness Gear!
February 2022
- Berglund Lab Builds Community
- Ask-the-Expert Returns
- Rare Disease Day (RDD)
- Participate in DM Research Today!
- The Jackson Laboratory Releases e-Book on Rare Disease Odyssey
- Are You Interested in MDF Clothing & Activewear?
- Download the Myotonic Dystrophy Anesthesia Guidelines!
- Research Fellow Feature - Larissa Nitschke, PhD
- Research Fellow Feature: Zoe Scherzer
- Join the MDF Caregivers Facebook Group!
- Volunteer with MDF!
- We're Hiring!
- My Featured Content:
January 2022
- Mark your Calendar for MDF's Major Events in 2022!
- 4 New Members Join MDF's Scientific Advisory Committee!
- You're Invited to our Virtual Community Meetings!
- Virginia - Jan 30
- Washington, DC - Feb 13
- Texas - Feb 13
- Iowa - Feb 27
- Northern California - Feb 27
- New York - Mar 13
- Pennsylvania - Mar 27
- Maryland - Apr 24
- Missouri - May 15
- MDF Reviews 2022 DM Research Fellowship Applications
- Virtual Learning Continues in 2022, Starting with Intimacy in February!
Ask-the-Expert - MDF is a Proud Sponsor of IDMC-13!
- Did You Know MDF has a Monthly DM2 Support Group?
- Healthier Living Discussion Group Off to a Strong Start
- Watch the COVID-19 & Vaccines Ask-the-Expert Webinar
- Share Your Stories to Help Improve DM Care!
- We're Hiring!
- My Featured Content: